This session provides users with an introduction to tools and resources that facilitate the implementation of FAIR in their research.

This video gives a short introduction to the EBRAINS data sharing platform, why it was developed, and how it contributes to open data sharing.

This video explains what metadata is, why it is important, and how you can organize your metadata to increase the FAIRness of your data on EBRAINS.

This video introduces the importance of writing a Data Descriptor to accompany your dataset on EBRAINS. It gives concrete examples on what information to include and highlights how this makes your data more FAIR.

In this lesson, users will learn about the importance of proper citation of software resources and tools used in neuroscientific research. 

Since their introduction in 2016, the FAIR data principles have gained increasing recognition and adoption in global neuroscience. FAIR defines a set of high level principles and practices for making digital objects, including data, software and workflows, Findable, Accessible, Interoperable and Reusable. But FAIR is not a specification; it leaves many of the specifics up to individual scientific disciplines to define. INCF has been leading the way in promoting, defining and implementing FAIR data practices for neuroscience. We have been bringing together researchers, infrastructure providers, industry and publishers through our programs and networks.

This lecture gives an introduction to the European Academy of Neurology, its recent achievements and ambitions.

This lecture gives an overview on the European Health Dataspace. 

In this talk, you will learn about the standardization schema for data formats among two of the US BRAIN Initiative networks: the Cell Census Network (BICCN) and the Cell Atlas Network (BICAN). 

This lesson is the first part of a three-part series on the development of neuroinformatic infrastructure to ensure compliance with European data privacy standards and laws. 

The International Brain Initiative (IBI) is a consortium of the world’s major large-scale brain initiatives and other organizations with a vested interest in catalyzing and advancing neuroscience research through international collaboration and knowledge sharing. This workshop introduces the IBI, the efforts of the Data Standards and Sharing Working Group,  and keynote lectures on the impact of data standards and sharing on large-scale brain projects, as well as a discussion on prospects and needs for neural data sharing.

Panel of experts discuss the virtues and risks of our digital health data being captured and used by others in the age of Facebook, metadata retention laws, Cambridge Analytica and a rapidly evolving neuroscience. The discussion was moderated by Jon Faine, ABC Radio presenter. The panelists were:

• Mr Sven Bluemmel, Victorian Information Commissioner
• Prof Judy Illes, Neuroethics Canada, University of British Columbia, Order of Canada
• Prof Mark Andrejevic, Professor of Media Studies, Monash University
• Ms Vrinda Edan, Chief Operating Officer, Victorian Mental Illness Awareness Council

In this interdisciplinary panel discussion, panelists explored and discussed the technical, ethical, and legal dimensions of brain data governance and neurorights.

Open Brain Consent is an international initiative aiming to address the challenge of creating participant consent language that will promote the open sharing of data, protect participant privacy, and conform to legal norms and institutional review boards.

Open Brain Consent addresses the aforementioned difficulties in neuroscience research with human participants by collecting:

• widely acceptable consent forms (with various translations) allowing deposition of anonymized data to public data archives
• collection of tools/pipelines to help anonymization of neuroimaging data making it ready for sharing

This lecture covers how you can make your data public through EBRAINS. This talk focuses on the ethical considerations for sharing data, the requirements that are imposed by various regulations, particularly for sharing human data. The lecture also includes a discussion of how EBRAINS designs its services to deal with the ethical and regulatory aspects of sharing these kinds of data.

This lecture discusses the challenges of protecting hospital data.

This lecture discusses differential privacy and synthetic data in the context of medical data sharing in clinical neurosciences.