Panel of experts discuss the virtues and risks of our digital health data being captured and used by others in the age of Facebook, metadata retention laws, Cambridge Analytica and a rapidly evolving neuroscience. The discussion was moderated by Jon Faine, ABC Radio presenter. The panelists were:

• Mr Sven Bluemmel, Victorian Information Commissioner
• Prof Judy Illes, Neuroethics Canada, University of British Columbia, Order of Canada
• Prof Mark Andrejevic, Professor of Media Studies, Monash University
• Ms Vrinda Edan, Chief Operating Officer, Victorian Mental Illness Awareness Council

In this interdisciplinary panel discussion, panelists explored and discussed the technical, ethical, and legal dimensions of brain data governance and neurorights.

Open Brain Consent is an international initiative aiming to address the challenge of creating participant consent language that will promote the open sharing of data, protect participant privacy, and conform to legal norms and institutional review boards.

Open Brain Consent addresses the aforementioned difficulties in neuroscience research with human participants by collecting:

• widely acceptable consent forms (with various translations) allowing deposition of anonymized data to public data archives
• collection of tools/pipelines to help anonymization of neuroimaging data making it ready for sharing

This lecture covers how you can make your data public through EBRAINS. This talk focuses on the ethical considerations for sharing data, the requirements that are imposed by various regulations, particularly for sharing human data. The lecture also includes a discussion of how EBRAINS designs its services to deal with the ethical and regulatory aspects of sharing these kinds of data.

This lecture discusses the challenges of protecting hospital data.

This lecture discusses differential privacy and synthetic data in the context of medical data sharing in clinical neurosciences.