This lecture gives an introduction to the European Academy of Neurology, its recent achievements and ambitions.
This lecture discusses the the importance and need for data sharing in clinical neuroscience.
This lecture presents the Medical Informatic Platform's data federation for Traumatic Brain Injury.
This lecture gives an overview on the European Health Dataspace.
This lecture presents the Medical Informatics Platform's data federation in epilepsy.
This lecture covers the biomedical researcher's perspective on FAIR data sharing and the importance of finding better ways to manage large datasets.
This lecture covers the benefits and difficulties involved when re-using open datasets, and how metadata is important to the process.
This lecture covers how you can make your data public through EBRAINS. This talk focuses on the ethical considerations for sharing data, the requirements that are imposed by various regulations, particularly for sharing human data. The lecture also includes a discussion of how EBRAINS designs its services to deal with the ethical and regulatory aspects of sharing these kinds of data.
This lecture discusses differential privacy and synthetic data in the context of medical data sharing in clinical neurosciences.
This presentation discusses the impact of data sharing in stroke.
This talks discusses data sharing in the context of dementia. It explains why data sharing in dementia is important, how data is usually shared in the field and illustrates two examples: the Netherlands Consortium Dementia cohorts and the European Platform for Neurodegenerative Diseases.
This talk introduces data sharing initiatives in Epilepsy, particularly across Europe.
The Medical Informatics Platform (MIP) Dementia had been installed in several memory clinics across Europe allowing them to federate their real-world databases. Research open access databases had also been integrated such as ADNI (Alzheimer’s Dementia Neuroimaging Initiative), reaching a cumulative case load of more than 5,000 patients (major cognitive disorder due to Alzheimer’s disease, other major cognitive disorder, minor cognitive disorder, controls). The statistic and machine learning tools implemented in the MIP allowed researchers to conduct easily federated analyses among Italian memory clinics (Redolfi et al. 2020) and also across borders between the French (Lille), the Swiss (Lausanne) and the Italian (Brescia) datasets.