Sharing brain imaging data in Europe
Sharing brain imaging data in Europe
The session explains GDPR rules around data sharing for research in Europe, the distinction between law and ethics, and introduces practical solutions for securely sharing sensitive datasets. Researchers have more flexibility than commonly assumed: scientific research is considered a public interest task, so explicit consent for data sharing isn’t legally required, though transparency and informing participants remain ethically important. The talk also introduces publicneuro.eu, a controlled-access platform that enables sharing neuroimaging datasets with open metadata, DOIs, and customizable access restrictions while ensuring GDPR compliance.
Topics covered in this lesson
- GDPR framework
- Consent vs. information
- Dynamic consent & transparency
- PublicNeuro.eu platform
- Open metadata, restricted data
- Flexible sharing options
- DOI assignment
- Institutional support
- Cost model
- Researcher benefit
External Links
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