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Panel of experts discuss the virtues and risks of our digital health data being captured and used by others in the age of Facebook, metadata retention laws, Cambridge Analytica and a rapidly evolving neuroscience. The discussion was moderated by Jon Faine, ABC Radio presenter. The panelists were:

  • Mr Sven Bluemmel, Victorian Information Commissioner
  • Prof Judy Illes, Neuroethics Canada, University of British Columbia, Order of Canada
  • Prof Mark Andrejevic, Professor of Media Studies, Monash University
  • Ms Vrinda Edan, Chief Operating Officer, Victorian Mental Illness Awareness Council


 

 

Difficulty level: Intermediate
Duration: 1:10:30

This lecture covers how you can make your data public through EBRAINS. This talk focuses on the ethical considerations for sharing data, the requirements that are imposed by various regulations, particularly for sharing human data. The lecture also includes a discussion of how EBRAINS designs its services to deal with the ethical and regulatory aspects of sharing these kinds of data.

Difficulty level: Intermediate
Duration: 16:15

This lecture discusses the challenges of protecting hospital data.

Difficulty level: Intermediate
Duration: 12:48

This lecture discusses differential privacy and synthetic data in the context of medical data sharing in clinical neurosciences.

Difficulty level: Intermediate
Duration: 20:26

This talk presents state-of-the-art methods for ensuring data privacy with a particular focus on medical data sharing across multiple organizations.

Difficulty level: Intermediate
Duration: 22:49

This talks presents ethics requirements of the Medical Informatics Platform, a data sharing platform for medical data using data federation mechanisms. The talk presents how the Medical Informatics Platform (MIP) works and which ethical requirements need to be considered when working with federated data.

Difficulty level: Intermediate
Duration: 16:25
Speaker: : Erika Borcel

This lecture talks about the usage of knowledge graphs in hospitals and related challenges of semantic interoperability.

Difficulty level: Intermediate
Duration: 24:32

In this talk the speakers will give a brief introduction of the Fenix Infrastructure and Service Offering, before focusing on Data Safety. The speaker will take the participants through the ETHZ-CSCS offering for EBRAINS and all the HBP Communities highlighting the Infrastructure role in a service implementation in respect of Security. Particular attention will be on showing what tools ETHZ-CSCS provides to a Portal/Service provider such as EBRAINS, MIP/HIP, TVB, NRP amongst others. Finally there will be given a quick glimpse into the future and the role that “multi-tenancy” will play.

Difficulty level: Intermediate
Duration: 20:05