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In response to a growing need in the neuroscience community for concrete guidance concerning ethically sound and pragmatically feasible open data-sharing, the CONP has created an ‘Ethics Toolkit’. These documents (links found below in 'Documents' section) are meant to help researchers identify key elements in the design and conduct of their projects that are often required for the open sharing of neuroscience data, such as model consent language and approaches to de-identification.
This guidance is the product of extended discussions and careful drafting by the CONP Ethics and Governance Committee that considers both Canadian and international ethical frameworks and research practice. The best way to cite these resources is with their associated Zenodo DOI:
Difficulty level: Beginner
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Open Brain Consent is an international initiative aiming to address the challenge of creating participant consent language that will promote the open sharing of data, protect participant privacy, and conform to legal norms and institutional review boards.
Open Brain Consent addresses the aforementioned difficulties in neuroscience research with human participants by collecting:
- widely acceptable consent forms (with various translations) allowing deposition of anonymized data to public data archives
- collection of tools/pipelines to help anonymization of neuroimaging data making it ready for sharing
Difficulty level: Beginner
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